Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

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And summer begins

Well, things have been fairly quiet lately, which is surprising as the kids got out of school for the summer last Friday.  It looks like it will be a pretty quiet summer for the most part.  Alex and I will take one trip to Alabama to see my stepmother; I’m sure we’ll see some sights and do some swimming, as well as visit family.  That’s the big excitement this summer – no other trips likely.

Tomorrow, our dear Sophie has another EEG.  Sigh.  I know that it is a valuable test, but I hate this process.  She normally is asleep by 9 – I have to keep her awake until midnight.  Then we get to get her up at 5 am.  And she can’t eat anything for 12 hours prior to the EEG.  Fun, fun, fun – there’s nothing quite like a hungry, sleep-deprived child to really make the day fun and exciting.  Sigh.   Ah well.  It will be over before I know it, I know – and I know it could be worse.  LOL knowing that does not make this process better.

Sophie is going to summer camp this week and she LOVES it.  It is a camp for disabled children and adults, so she should be able to continue to go as long as we get applications in in a timely fashion.  They do arts, music, and other activities plus she gets to swim for a while at the end of the day, every day, so she really looks forward to this camp.  She goes three or four weeks every year.  Normally it is four, but I took too long getting my application in this year.

There is also summer school for Sophie.  This year, though, they shaved two weeks off of it.  I think someone, somewhere, missed the point of summer school for special needs children – at least some of the point.  One thing I liked about summer school was that it kept there from being a huge gap between one school year and the next.  Well, now there is going to be a big gap between school year, summer school, and school year.  In addition, she does better with a routine.  With a six-week summer school it was easier to keep her in a routine.  Well, there’s not much I can do about it; I am sure this is a result of budget issues within the school system.


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Busy Days

Oh June…what a month.  Our children’s birthdays are on the 7th and the 11th, two years apart.  Father’s Day is afterward.  School gets out.  My daughter’s summer school starts right at the end, and this year, so does summer camp for her.  It is all good stuff – and we’re really THRILLED about summer camp – but it makes me tired to think of preparing for all of it.  Sigh.  I have to get over that.

Add to that that both kids have recently had a stomach bug and my daughter doesn’t understand throwing up into a trash can, and you can imagine that things have really been hectic lately. That little detail – that she doesn’t understand throwing up into a trash can – exemplifies the little complications in our life.   One of those little details those on the outside of our life don’t see or think about.  Thankfully, this particular complication is not an issue very often but still…sigh.  It would be nice if we could explain it to her.

Hello June

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Yippeeee…the bus is here….ahem…of course, I’ll miss you today sweetie…

First day back to school

The end of summer is upon us.  Ok, for some it already hit.  In our area, school starts tomorrow and US football starts on Thursday (I think).  Our community pool closed yesterday.  Yesterday was the last day to go to a local water park.  All in all, despite the fact that hot temperatures will last about two more months, summer is in effect over.  I honestly can’t say that I’m sorry.  I enjoyed a lot of things this summer, including a visit in Alabama to see my father and stepmom.  But the idea of getting back into a schedule, a routine, and of getting the kids back to normal routines …ah what bliss.

Add to that the fact that I will go back to having some quiet time to myself every day…and you are looking at a VERY happy camper.

In the case of my children, I think they are both happier overall while school is in session (although I am fairly certain they’d deny it).  My daughter adores bus rides (good thing, since hers are about 45 minutes each way) and she loves having the routine of class – doing the same things at the same time each day.   My son gets better sleep when school is in session – between the exercise of playing outside with friends and the mental exercise of school work, he seems to go to sleep easier. So…even I know he doesn’t feel happier about school, he DOES feel better.  Or at least he will once we get past the re-adjustment period.

This first week back…what to do, what to do, what to do with my time…

Sadly, I did have to fill today’s quiet time with work – running errands.  As an aside, can I just say that having a child that is so particular about what she eats that only ONE store (or family of stores) carries the ONE protein she will eat is incredibly challenging?  And no, this isn’t bad parenting or a child run amok.  She is autistic and we believe that this is a texture issue – maybe.  I had to go to two different Food Lion stores to get two small boxes of her favorite chicken (the only meat that she will eat)…and walking around the store to find out if they had it wasn’t my idea of fun.  Not with two broken toes.  At any rate, I did finally  wrangle two small boxes of the chicken.  Hopefully that will last long enough to get through the weekend – or long enough to get family to help me drive around looking for it.  Seriously. the things you will DO for your children…LOL.

After a hit and a miss with grocery stores. I managed to get what was necessary and no more.  Then went home for lunch.  I didn’t cook either – I feel a bum foot should get you out of some situations like cooking dinner.  Andy, bless his dear heart, did make dinner, thank goodness.  I was completely done with walking at this point.

So much for a quiet day, putting my feet up.  Would up bathing Sophie, entertaining her, helping Alex with computer problems, and getting groceries.  I’m exhausted.