Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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And summer begins

Well, things have been fairly quiet lately, which is surprising as the kids got out of school for the summer last Friday.  It looks like it will be a pretty quiet summer for the most part.  Alex and I will take one trip to Alabama to see my stepmother; I’m sure we’ll see some sights and do some swimming, as well as visit family.  That’s the big excitement this summer – no other trips likely.

Tomorrow, our dear Sophie has another EEG.  Sigh.  I know that it is a valuable test, but I hate this process.  She normally is asleep by 9 – I have to keep her awake until midnight.  Then we get to get her up at 5 am.  And she can’t eat anything for 12 hours prior to the EEG.  Fun, fun, fun – there’s nothing quite like a hungry, sleep-deprived child to really make the day fun and exciting.  Sigh.   Ah well.  It will be over before I know it, I know – and I know it could be worse.  LOL knowing that does not make this process better.

Sophie is going to summer camp this week and she LOVES it.  It is a camp for disabled children and adults, so she should be able to continue to go as long as we get applications in in a timely fashion.  They do arts, music, and other activities plus she gets to swim for a while at the end of the day, every day, so she really looks forward to this camp.  She goes three or four weeks every year.  Normally it is four, but I took too long getting my application in this year.

There is also summer school for Sophie.  This year, though, they shaved two weeks off of it.  I think someone, somewhere, missed the point of summer school for special needs children – at least some of the point.  One thing I liked about summer school was that it kept there from being a huge gap between one school year and the next.  Well, now there is going to be a big gap between school year, summer school, and school year.  In addition, she does better with a routine.  With a six-week summer school it was easier to keep her in a routine.  Well, there’s not much I can do about it; I am sure this is a result of budget issues within the school system.

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I swear she could get to school faster by horseback

Well, summer school starts tomorrow for our little princess.  It seems that the school system, in its infinite wisdom, put her and the other special needs students in the school absolutely farthest from our home.  Of course, to be honest, it could be near the other students…but I’m thinking about all this from our daughter’s perspective.  She will get on the bus at 6:40 am tomorrow … to be at school by 8 am.  Sigh.  Se will leave school at 11 – and the driver says she should be home by 12 N.  Lovely.  All I can say is that it is a good thing that she thinks school buses are the best things EVER.  I bet she sleeps all the way home.

Really, as much as the school choice annoys me and worries me, I do have to say that our school system has been VERY good for our children.  They do have their issues (we have to watch out for cutting costs just for the idea of cutting costs, regardless of the impact on the student)…but they have made a TREMENDOUS difference to both of our children.  I am grateful for all that they’ve done.  My son went from being literally speechless (speech-delayed) to talking up a storm and reading way above grade-level and being GREAT at math.  My daughter is making efforts to communicate her wants/needs (not through speech, but STILL huge) and is starting do other things we were wondering if she would ever do.  She is much better with eye contact and affection and playing with others.  The difference in both children is completely wonderful.

Still…6:40 am?  Really?  Sigh.