Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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At a loss for words

Well.  I am just speechless.  After all that we’ve been through with our daughter who has Lennox-Gastaut Syndrome, it amazes me that what has (temporarily) derailed me is the “label” that the school is using for my son (who is 6) – we had IEP meetings for both children this week and they said that they consider him on the autism spectrum.

Amazing to me that I’ve done what I’ve needed to, mostly, facing her medical issues but this…this just really pushed me under.  It has taken three days for me to get a grip on myself and stop feeling so sad.  I don’t know why this affected me so badly.  Perhaps it is just that this is the latest in a long string of issues.  That my body is well and truly exhausted.

We also found out that our daughter may have a second, rare syndrome – Rett Syndrome.  That too has been depressing, though I realize that we just had the blood work done, with the doctor’s request for genetic testing for Rett.

Things really have been coming at us thick and fast over the past two weeks.  I am just so tired.

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