Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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Crowning me…part 1

I started the process of getting my crown replaced today – plus I got a filling replaced.  All in all, it went well but my jaw is achy on that side.  I can’t wait for THAT to stop.  All I felt like eating today was soup.  They cleaned up several places on my teeth and made sure that the tooth they were crowning was ready, then sent digital images to the lab that will make my tooth.  The last time I had this done, I had to bite into some goop (nice technical term, don’t you think?) and then they sent that off.  Ah times have changed.

Otherwise, there isn’t really much going on.  The school threatened to send Sophie home again today but (a) we just took her to the doctor who said she wasn’t sick and (b) her temperature apparently never got above 99.6 – which isn’t a fever according to the doctor.  If I have to, I will go back to the doctor and get her to write a note to that effect so that the school has to stop this nonsense.  My daughter has as much right to an education as other children, at least at the moment.  That may change under the current presidential administration; we shall see.

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Update on seizures

Well, I cannot believe it has been 22 days since I posted about my daughter’s seizure.  I did talk to her neurologist, or rather her father did.  He thinks it was the problem getting her medicine from the pharmacy and that once she was back on it regularly, she wouldn’t have any more problems.  So far, so good.  22 days and no more seizures.  That was still scary – and somewhat discouraging, in that her seizures are controlled but definitely not going away.

Sigh.  Well, she was diagnosed with a form of epilepsy that she won’t grow out of so I suppose it really shouldn’t surprise me.  Still, you can’t help being disappointed.  I suppose that somewhere in the recesses of my mind there was a small, flickering hope that it would go away.  I know that’s not rational, but there you have it.  As a mother, I can’t help it.

At any rate, life is going back to normal.  We’ve all had a bad cold for over a week now.  That is getting really old, really fast.  If I could just curl up and sleep for a day or two, I’m sure I’d recover quicker, but of course that isn’t going to happen.  This weekend was restful, but of course there was still laundry, grocery shopping, etc. that had to be done.  Ah well.  It is what it is.  I’ll get better any way, but I would really LOVE to sleep.

Right now that is what I want for my upcoming birthday – sleep!

There’s not much else going on.  Due to the health issues, my daughter was out of school all week.  I don’t think she’s gone a full week to school this year, between being sick, holidays, and snow.  Sigh.  I hate that she’s missed so much school – and it makes getting her into a regular schedule difficult.  She did make it through the day today, which was wonderful – and she ate a good dinner, which made me happy.  (LOL, it is the little things that please me these days!)

 


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Big Day for Our Girl

Our daughter had an appointment with her orthopedic doctor today.  She’s been seeing him since she was about three years old; she’s nine now.  That doesn’t sound like much until you figure in that she might see him 2-3 times a year when her feet were really growing or she needed new braces for some other reason.  So, basically, she has had ankle-foot orthotics (AFOs) since she was about 3-4.

At the end of the school year last year, I took her in because she needed new AFOs.  I can’t remember why now, but I think it was just that she was rough on them.  She likes to run and jump and move about and eventually that takes a toll on the ankle portion of the AFO.  Anyway, we went in and her doctor was so impressed with her progress that he said she could have the summer off, free of braces.  That is a wonderful thing – the braces would come up to just under her knees and being basically plastic, they do cause a  lot of sweating in warmer weather.  We were very happy.

So today we went back as a follow-up.  Her doctor had asked us to bring her in at the end of summer to she how she was doing; we got a little behind and managed to get an appointment today.  He said she looks great and she doesn’t need the AFOs anymore!  I am SO happy! So is she; she was always patient about putting the AFOs on and did fine wearing them, but you can see how much more she enjoys running and jumping now.