Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

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Well THAT’S an interesting reaction

I got my hair chopped off today.  Well, cut nicely thank you, but it is SHORT.  It was maybe chin-lenth or so – now it is flat against my head on the sides and kind of fluffy (LOL) on the top.  (Fluffy thanks to curls that can still do their thing, a little).  Apparently, when confused about your emotions, go for a drastic hair change.  Sigh.  Overall I think I will be happy with this.  I don’t know that my decision to shake up my look has anything to do with recent emotional turmoil, but I think it might.  Maybe I just need changes in my life.  At any rate, I think I’m going to slow down on the changes a bit.  Completely changing my look is enough for now.

And tomorrow is my birthday…LOL.  My new look should cause a stir. 🙂

Do I know how to time things or what?

Next up: going back to coloring my hair red!


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Big Day for Our Girl

Our daughter had an appointment with her orthopedic doctor today.  She’s been seeing him since she was about three years old; she’s nine now.  That doesn’t sound like much until you figure in that she might see him 2-3 times a year when her feet were really growing or she needed new braces for some other reason.  So, basically, she has had ankle-foot orthotics (AFOs) since she was about 3-4.

At the end of the school year last year, I took her in because she needed new AFOs.  I can’t remember why now, but I think it was just that she was rough on them.  She likes to run and jump and move about and eventually that takes a toll on the ankle portion of the AFO.  Anyway, we went in and her doctor was so impressed with her progress that he said she could have the summer off, free of braces.  That is a wonderful thing – the braces would come up to just under her knees and being basically plastic, they do cause a  lot of sweating in warmer weather.  We were very happy.

So today we went back as a follow-up.  Her doctor had asked us to bring her in at the end of summer to she how she was doing; we got a little behind and managed to get an appointment today.  He said she looks great and she doesn’t need the AFOs anymore!  I am SO happy! So is she; she was always patient about putting the AFOs on and did fine wearing them, but you can see how much more she enjoys running and jumping now.



Slowly reaching out

I am finally putting myself out there, reaching out and responding to other parents in support groups (online) for parents of children with LGS.  I cannot honestly say why it has taken me so long to do this, though I think I have had a lot of stuff on my plate.  Anyway, now I am doing it.  I’m a little nervous, which is silly.  It is almost like I’m afraid people won’t like me or won’t want to hear what I have to say.  Really, if either is true, so what?  They can ignore me.  That’s just fine by me.

I guess it is just that it is remarkably hard for me to open myself up.  Somewhat odd for someone with a blog, but it is hard for me to share personal details.  This blog feels different to me.  I welcome input but don’t get a whole lot – fine too 🙂  by the way.  Actually, I think keeping this blog is helping me open up.  I’ve been writing here for a while now and nothing dreadful has happened.  It helps to have a place to vent, to share frustrations, and to share triumphs.  With the support groups, I am hoping that it will help to talk to others in similar positions with similar experiences.

We shall see.  Who knows…maybe I will make new friends.  That would be lovely.