Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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And summer begins

Well, things have been fairly quiet lately, which is surprising as the kids got out of school for the summer last Friday.  It looks like it will be a pretty quiet summer for the most part.  Alex and I will take one trip to Alabama to see my stepmother; I’m sure we’ll see some sights and do some swimming, as well as visit family.  That’s the big excitement this summer – no other trips likely.

Tomorrow, our dear Sophie has another EEG.  Sigh.  I know that it is a valuable test, but I hate this process.  She normally is asleep by 9 – I have to keep her awake until midnight.  Then we get to get her up at 5 am.  And she can’t eat anything for 12 hours prior to the EEG.  Fun, fun, fun – there’s nothing quite like a hungry, sleep-deprived child to really make the day fun and exciting.  Sigh.   Ah well.  It will be over before I know it, I know – and I know it could be worse.  LOL knowing that does not make this process better.

Sophie is going to summer camp this week and she LOVES it.  It is a camp for disabled children and adults, so she should be able to continue to go as long as we get applications in in a timely fashion.  They do arts, music, and other activities plus she gets to swim for a while at the end of the day, every day, so she really looks forward to this camp.  She goes three or four weeks every year.  Normally it is four, but I took too long getting my application in this year.

There is also summer school for Sophie.  This year, though, they shaved two weeks off of it.  I think someone, somewhere, missed the point of summer school for special needs children – at least some of the point.  One thing I liked about summer school was that it kept there from being a huge gap between one school year and the next.  Well, now there is going to be a big gap between school year, summer school, and school year.  In addition, she does better with a routine.  With a six-week summer school it was easier to keep her in a routine.  Well, there’s not much I can do about it; I am sure this is a result of budget issues within the school system.

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Seems like just yesterday

It seems like just yesterday that I brought an adorable, serious little guy home from the hospital.  In reality, he is now 12 years old, as of this afternoon.  So hard to believe.  So far from the serious little guy that we brought home from the hospital that he is almost as tall as I am.  Sigh.  Now, I’m the proud mother of a child just short of his teens…how did THAT happen?

I’m so proud of him.  He is sweet, caring, thoughtful, and smart.  He held the door for me at dinner tonight, asked me if I needed help with something I was carrying, and he’s funny to boot.  We have our times when we but heads but overall, he’s a wonderful son.

 

6-7-17 ALex


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Wow what a night!

We had at least one tornado and possibly more touch down near us tonight.  Thankfully, neither was close to us.  The closest one was 2-3 miles away.  I’m truly grateful it was no closer – it destroyed a church, and damaged several nearby houses.    The thunderstorm that followed the hail and the tornado(s) was really severe.  All in all, it was a tense hour or two.

My mother and stepfather returned tonight from Duke University, where they saw a cancer specialist.  They performed a scan of some sort, then went in (non-surgically) to take a look at his tumor.  The news wasn’t good.  They cannot operate on him.  That doesn’t leave many options.  He will go back to his oncologist sometime soon and see what he says, but Dad already said he won’t have more chemo (of course, Mom said that was before he knew they couldn’t operate).  We shall see, but I think his time is limited.