Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

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Is insane

My daughter was hospitalized for four days recently.  She’s four.  They checked her vitals every FOUR hours around the clock.  They ran blood tests every four or every TWO hours.  This does not make for a happy four year old.  She does NOT understand and she does NOT talk…consequently she DID scream.

And she STILL screams when a doctor tries to take her blood pressure.  Or approach with a needle.  Or do ANYTHING that she things is a gross personal invasion…sigh.

Unfortunately, with Lennox-Gastaut Syndrome, she has a lifetime of these sorts of experiences to look forward to; I may just quietly go mad, if nobody minds.