Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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Big Day for Our Girl

Our daughter had an appointment with her orthopedic doctor today.  She’s been seeing him since she was about three years old; she’s nine now.  That doesn’t sound like much until you figure in that she might see him 2-3 times a year when her feet were really growing or she needed new braces for some other reason.  So, basically, she has had ankle-foot orthotics (AFOs) since she was about 3-4.

At the end of the school year last year, I took her in because she needed new AFOs.  I can’t remember why now, but I think it was just that she was rough on them.  She likes to run and jump and move about and eventually that takes a toll on the ankle portion of the AFO.  Anyway, we went in and her doctor was so impressed with her progress that he said she could have the summer off, free of braces.  That is a wonderful thing – the braces would come up to just under her knees and being basically plastic, they do cause a  lot of sweating in warmer weather.  We were very happy.

So today we went back as a follow-up.  Her doctor had asked us to bring her in at the end of summer to she how she was doing; we got a little behind and managed to get an appointment today.  He said she looks great and she doesn’t need the AFOs anymore!  I am SO happy! So is she; she was always patient about putting the AFOs on and did fine wearing them, but you can see how much more she enjoys running and jumping now.

 

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Good news, bad news

I’ll start with the positive.  My DD (darling daughter) had an appointment with her orthopedic doctor due to the fact her ankle-foot orthotics (AFOs) were cracking around her ankles.  To say she’s rough on her braces is an understatement.  I really expected the usual:  check her out, see her walk, write prescription for new braces.  We’ve been dealing with this for about 5 years now, I guess.  I really like her doctor – he’s great with her.  He heard that she spent our full 30 minutes in the waiting room running around the waiting room and speed-walking, came in and watched her dance around the room, and said he thinks she should take a break for the summer and we’ll re-evaluate in the fall.  It looks like she might be done with braces!  Yay!

Now, the bad news.  Our insurance company is doing what insurance companies do best: denying something our daughter needs, according to her developmental pediatrician.  That is, they decided not to cover ABA therapy in our home.  Mind you, they told officials with the company we’re going through twice – not once, but twice and with different people – that it would be covered.  It was only after they got more information that they decided, “Oh well.  We changed our minds – denied.”  Sigh.  I’m going to file an appeal, but that just takes more time and I suspect I know how it will end.  This may be the kick in the pants that I need to start the process of seeking the EDCD waiver for our little girl.  I haven’t known where to start, but this ABA company has offered to walk me through the process as has someone from another support group who does this regularly for others.  At least I’m getting off to a good start with support from knowledgeable people.

 


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Peace and quiet

Today was not extraordinary.  There was absolutely nothing outstanding about today – and it was lovely.  Some days all you want is a nice, quiet family day and today we had one.

We spent some time at my in-laws’ house, letting our daughter run around their nice fenced-in yard and letting our son enjoy a Titanic documentary on DVR.  That gave my husband and I time to visit with other adults, always a nice thing!

We also managed to get out to the shoe store to replace our daughter’s shoes that fit over her braces (AFOs) – boy is she hard on shoes.  She drags her toes sometimes, enough that it has an effect on the shoes, plus she just flat out runs a LOT.

Then we came home and had a nice afternoon and evening together as a family.  I ran up the street for fried chicken and after dinner, my husband and I played a game with our son, much to his delight.  He definitely is following in his father’s footsteps, with an interest in playing games.

All in all, a very nice, ordinary day.