Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?


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Wow every time I think I get it together, some new wind comes a long and blows me over

My daughter, 3, had to be rushed to the ER at the children’s hospital yesterday from school.  She had a five-minute seizure followed imediately by a much shorter one.  That’s dangerous – the neurologist told us to call 911 anytime her seizures were five minutes +.  This is the first time we’ve had to do but, but unfortunately, I think this is what our life is going to be now.

She has Lennox-Gastaut Syndrome and seizures with this syndrome are notoriously hard to control, I’m told.  It is a rare, severe form of epilepsy.  I’m just beginning to wrap my mind about the diagnosis – and now we have a trip to the ER.  Sigh.  And this morning, we are no further along than we were last night.  Aaargh.

I am just numb right now.  I thought I was doing better, pulling myself together … but now, I am just numb.  I just want to sleep – even though I got a good night’s sleep last night (funny what exhaustion will do).  I’m going to try to talk to my friends today because I am really having a hard time.

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Packing, moving, unpacking…ugh

Well it appears that our application for the apartment complex was accepted. I’m going to call Monday to confirm that they will have the layout we requested available when we need it.

Now comes the “argh, I’m going to pull my hair out part” – packing and living with boxes around me for what feels like an eternity….sigh.

I know we’ll have help when we need it, but I really hate this part. At least now, we figure we can stay in the apartment for as long as we chose – no more moving after two years because the owners want their townhouse back! I have enjoyed living here, but it will be nice to stay in one place and move when WE are ready to do it!