And hopefully we will be a source of support for each other. It turns out that a child in my daughter’s preschool class two years ago also has LGS, and they go to the same pediatric neurologist that we do. Now, it isn’t as if pediatric neurologists are a dime a dozen here, but there are at least five or six in the children’s hospital nearby – and they go to the same individual that we do. Anyway, I met the mother for lunch on Monday and we talked nonstop for an hour. We DID manage to eat, but I couldn’t tell you how. It was a fantastic feeling to share experiences with someone who has seen what I’ve seen, been through what I’ve been through. I cannot even begin to describe the relief.
That feels odd to write, because I feel like I’m being critical of people around us who have been supportive, but truly I don’t mean it that way. Our families can share our pain, but none of them have really lived it. I am grateful for all that they do, but it is something else to be with someone else that is truly on the same path I am.
What a day!