Today was quite the exciting day. First, my daughter’s AFOs (ankle-foot orthotics – basically, ankle braces) cracked around one side. Then, once I got that handled (at least shoes that fit her feet without the braces to her at school), the school nurse called me to say that she had a seizure at school, one that lasted nearly five minutes.
She hasn’t had seizures in two years. This came as …well, not exactly a shock since she has Lennox-Gastaut Syndrome (which involves intractable seizures and typically, resistance to medicines), but it was disheartening. I’m holding on to the thought that the typical growth pattern is partially what is causing this and perhaps it will be a simple matter of adjusting her medication now that she’s older and heavier. Sigh. I knew this day would come, but the days without seizures have been incredible.
Well, she’s in good health overall, and she WAS able to go back to what she was doing without issues afterward. I’m grateful for any time at all that we have without seizures, and I am grateful for her good health and that of her brother as well.