Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

A new, less stormy me

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Things are going fairly well now.  Well, our older cars are starting to show their age, which is inconvenient to say the least, but given all else that we’ve been through – that’s nothing.   I think we can deal with things that can either be replaced or repaired.

Our daughter is on a medicine that is specifically used for her syndrome – and it is doing wonders.  She has not had a seizure that we’ve seen in two months.  That has not happened since she was 9 months old; she will be four in June.  She is playing with toys, hugging her friends at school, hugging all of the family including her brother.  She chases her brother and responds to his tickles.  She giggles and she is starting to make more sounds.  It is like a light switch was flipped.

Our son is doing really well too.  He’s in kindergarten and has really taken off.  He is reading as fast as we can find books for him.  His speech is getting better and he is absorbing new words and phrases like a sponge.

All of this is so incredible and so exciting…and so exhausting to keep up with.  Believe me, I’m not complaining – just trying to keep up.  I’ve started meditating and journaling, and I’ve discovered that both of these are puzzle pieces to my life that I was missing, but didn’t realize it.  I am now calmer, steadier, more balanced.    I like being me – for the first time in a very long time.


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