My daughter, 3, had to be rushed to the ER at the children’s hospital yesterday from school. She had a five-minute seizure followed imediately by a much shorter one. That’s dangerous – the neurologist told us to call 911 anytime her seizures were five minutes +. This is the first time we’ve had to do but, but unfortunately, I think this is what our life is going to be now.
She has Lennox-Gastaut Syndrome and seizures with this syndrome are notoriously hard to control, I’m told. It is a rare, severe form of epilepsy. I’m just beginning to wrap my mind about the diagnosis – and now we have a trip to the ER. Sigh. And this morning, we are no further along than we were last night. Aaargh.
I am just numb right now. I thought I was doing better, pulling myself together … but now, I am just numb. I just want to sleep – even though I got a good night’s sleep last night (funny what exhaustion will do). I’m going to try to talk to my friends today because I am really having a hard time.