Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

Don’t turn that dial…

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Well, I think I’m going to have to.  I am still adjusting to the news that my daughter (3) has Lennox-Gastaut syndrome.  Most of the time, I think I am doing fine – but I have bursts of crying.  I can’t sleep some nights – and sometimes even when I can get to sleep, I can’t stay that way.  The first two weeks were really rough.

My stepsister once told me that having children was like having your heart walking around outside your body.  For the first time, I think I understand – and it hurts like nobody’s business.   I feel as if I’m on a roller coaster, going up, up, up…

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