Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

The sound of pure joy…


It is 9:44 pm, my daughter (16 months) is still squealing with joy…and I am so very grateful.  She’s been so quiet and solemn for so long…I wondered if I would ever hear this.    I cannot even begin to describe what I’m feeling today.

Today, she’s been squealing, she smiled all day, she’s started picking up her cup and drinking out of it.  The progress that she’s made since she started her injections is UNBELIEVABLE.  I am so grateful for medical science.

I could listen to those squeals forever…   🙂


2 thoughts on “The sound of pure joy…

  1. I am so glad things are progressing so well!


  2. Thank you – it is SO incredible!


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