Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

Notes on Sophie (5-12-08 through )

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  • 4:05 am – typical night-time episode complete with loud scream. Passed quickly though – within 5 minutes she was calm and back in bed.
  • 8:20+ – a few head jerks
  • Afternoon – head jerks, no screaming, passed very quickly


  • 6:24 am – screamed, a head-jerk, then it was over and she calmed down and went to sleep.
  • 7:35 am – a head-jerk or two, then it was over. She leaned against me for a few minutes then wanted down to play.


  • Today was pretty good – there were a few episodes but they were all over quickly.
  • 7:57 pm – a more typical night seizure; she screamed loudly and her head jerked forward four or five times.  By 4 after 8, she was asleep again.

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