Being Me…

and discovering that that is quite the roller coaster ride. Wanna come along?

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Notes on Sophie (5-9-08 through 5-11-08)

5/9/08 Friday

  • 7:00 am or so: another event; it was mild but she screamed. After a few minutes, she calmed and went back to sleep.
  • 9:45 am – several brief head-jerking episodes. After that, (10 am or so), had breakfast and medicine.
  • 3:45 pm – minor seizure with head-jerking, several times in a row. Over in a few minutes.


  • No nighttime, post-bedtime seizure


  • 8:30 am – small seizure, screamed once and several head-jerks, but over very quickly
  • 9:08 am – small seizure, no screaming (barely disturbed her), 3 headjerks
  • 6:15 pm – small, no screaming. Multiple headjerks – 3-4.
  • 7:45 pm or so – cried loudly, but if it was a seizure it was over very quickly. I picked her up and she cried once or twice, then put her thumb in her mouth and laid her head on my shoulder and went back to sleep.

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I’ve been neglecting this…

And I can feel it.  I’m in the midst of a move, health issues with my daughter, development issues with my son, financial struggles, the search for work, the search for health insurance…and I’ve had this on a back burner.  (Go figure…how many FRONT burners does one person have?)

But I can feel it.  I feel better when I write, journal, whatever – whether it is actually written or typed.  I feel better if I take some time during the day to write out what I need to remember, what is worrying me, what I need to do or take care of, plan things out, or simply vent.  I really need to do this right now – surely 5-10-15 minutes a day is doable.