Ups and downs…
Well my daughter has started a second medicine – Topamax – and at first it seemed to result in MORE seizures, but now that the dosage has increased, she seems to have adjusted and the seizures are less frequent and less…obvious. She’s doing really well now – well, she’s acting more like a typical 2-year-old, which I guess you could say is both GREAT and …well, trying. LOL.
We are really, really pleased at her progress and her brother’s – he just got out of his first year of school and he won an award for “Academic Excellence”!
All in all, things seem to be moving in the right direction…after a long, long struggle!
Great News indeed for our little one…
Well, as of 6/7, Alex is a big, “old” 4-year-old (ok, to him, old is dirty, but you get the meaning…).
On 6/11, Miss Sophie will be 2…sigh…I remember when I could hold and love on both of them…not so much these days.
Sophie had an appointment with the neurologist today. Her sleeping EEG isn’t as good as the doctor would like, but waking is almost normal! YAY! So, she will be starting another medicine day after tomorrow that the doctor says may make the seizures STOP…
I cannot begin to tell you what that would mean to me. Words fail me.
She had lots of seizures this past week…the idea that something could make them stop is unbelievable.
I cannot begin to put into words what this journey is like. I know some of you who read this will understand…but it is unreal.
Being me? I’m not sure I want to…
What a weekend…the second in a row. The majority of childcare, housecare, etc. On top of insurance worries, behavioral issues and the like.
Can I be someone else now? Please?
I’m doing the best I can but it feels so futile some times. My three-year-old has behavioral issues with school – and at home – and its exhausting. My one-and-a-half yearold has seizures and health issues.
I have done my best to keep my head above waters, but I’m so tired.
I’m just so tired. I had a massage this weekend courtesy of a coworker of my husband’s – and half an hour later I was back where I was before I started. Sigh.
