Swine flu and general misery…
What a week…basically, our entire house is miserable. I guess that is usually the way it is, but this is particularly bad. I have bronchitis and swine flu (possibly), my husband has swine flu (possibly), my daughter has a very bad cold, my son has a cough…and my uncle died today.
If things like this don’t make you want to just curl up in bed and pull the covers over your head, I don’t know what will.
I really dream of feeling normal again…lol, whatever that might actually be. Seems like this has lasted forever, even though it is just a week now since it started for my husband. I know this will pass, and really fairly quickly, given the medicine we’ve been given, but it sure doesn’t feel like it when you are going through it. I will say that I am much for grateful for small things like clean laundry, peace and quiet, a good nap…
Ups and downs…
Well my daughter has started a second medicine – Topamax – and at first it seemed to result in MORE seizures, but now that the dosage has increased, she seems to have adjusted and the seizures are less frequent and less…obvious. She’s doing really well now – well, she’s acting more like a typical 2-year-old, which I guess you could say is both GREAT and …well, trying. LOL.
We are really, really pleased at her progress and her brother’s – he just got out of his first year of school and he won an award for “Academic Excellence”!
All in all, things seem to be moving in the right direction…after a long, long struggle!
Great News indeed for our little one…
Well, as of 6/7, Alex is a big, “old” 4-year-old (ok, to him, old is dirty, but you get the meaning…).
On 6/11, Miss Sophie will be 2…sigh…I remember when I could hold and love on both of them…not so much these days.
Sophie had an appointment with the neurologist today. Her sleeping EEG isn’t as good as the doctor would like, but waking is almost normal! YAY! So, she will be starting another medicine day after tomorrow that the doctor says may make the seizures STOP…
I cannot begin to tell you what that would mean to me. Words fail me.
She had lots of seizures this past week…the idea that something could make them stop is unbelievable.
I cannot begin to put into words what this journey is like. I know some of you who read this will understand…but it is unreal.
